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Kevin's avatar

Have always struggled with sleep and this became even more pronounced after diagnosis when I started taking stimulants. Many times I just didn't sleep as I'd be lying there and be wide awake so I just got up. Was getting very concerned about this and was going to mention it to my doctor.

But then one day for some reason I didn't get a chance to have a brew in the afternoon and that night I was out like a light. Tried it again the next day, slept like a log. Next day had an afternoon coffee was a night owl again.

I now limit myself to a single coffee at breakfast (any caffeine past midday effects my sleep) and for the last few months I can't even remotely stay awake past midnight. I am a yawning mess after 11pm and easily get to bed (like other commenters I found it hard to go to bed) and be asleep inside half an hour and usually get 6-7 hours sleep. THIS IS NOT NORMAL FOR ME AT ALL.

What I think happened is that when I started taking stimulants it made me much more sensitive to caffeine. Previously I'd need a brew *before* bed which calmed me down and helped me sleep, I didn't change my caffeine habit after diagnosis.

Obviously everyone is going to be different and cutting caffeine is sacrilegious to many (myself included) but perhaps try it for a week.

PS: I'm 48 and was diagnosed two years ago, I take a single slow release stimulant in the morning which lasts all day into the late afternoon/early evening.

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